After several races with my brother (New York Marathon, Trail des Templiers, Saintélyon ...) and eager to discover the desert, the project to participate in the MARATHON DES SABLES emerged in early 2016.
The decision was made: in 2017 we would both be on the starting line of the 32nd MDS.
The challenge is first of all personal: to end this mythical test, if possible within a reasonable time. But why run for yourself when you can also do it for others? To commit to an association is an opportunity to be seized, an additional motivation to reach the finish line, a way to make useful and solidarity our race. Our second objective is to collect the maximum donations for ARSLA.
All donations collected before our departure will motivate us even more! All your donations during the event will help us cross the finish line. We chose not to collect anything to finance our participation.
THANK YOU FOR YOUR SUPPORT !
About the association ARSLA
Association for Research on Amyotrophic Lateral Sclerosis and Other Motor Neuron Diseases
The first French association committed to ALS (Amyotrophic Lateral Sclerosis or Charcot's Disease), ARSLA has been working on all fronts for more than 30 years to bring about the eradication of this disease.
Its two missions are:
- Support for research to give hope for the disease: ARSLA provides global support for research in order to stimulate the innovative capacity of researchers and give them the freedom to open up new research Pathways in all areas of research: clinical, fundamental, genetics, human sciences ...
- Helping patients : ALS leads to a rapid loss of autonomy, and very specific equipment, sometimes expensive, is necessary to improve the patient's daily life and allow him to remain as autonomous as possible.
Finally, ARSLA's constant challenge is to respond to the evolving needs of patients to improve access to care, improve their quality of life and that of their loved ones, and respond to government inadequacies through political advocacy Or financial mobilization.
Since 1985, more than 20,000 patients have benefited from the assistance of the ARSLA.
To make a donation
Join the association : http://www.arsla.org/devenir-adherent/
Dedicated collect page : https://www.helloasso.com/utilisateurs/droin-thierry-et-frederic/collectes/mds2017-solidarite-arsla