79 BOUTES Sebastien
138 DEBORD Helene
199 JUBAULT Jean Pierre
233 LESVEN Ronan
265 PHILIPPE Bruno
We already participate to several marathons, trails and 100km, but it is was not enough and we need to go beyong. With some running companion, we decided to face the MDS challenge. This mythic race was for us the outcome of the thousands kilometres already run. It is a personal transcending but also human adventure we wanted to share together. During our preparation to this travel and race, it became obvious that we could not do that for ourselves but have to give it a higher dimension.
Then we tough to Lenny, little boy, who is suffering from muscular dystrophy (myopathy), who day after day has a greater challenge with his continuous loss of autonomy and mobility.
Which better motivation to think that each step we will do is maybe a step he will do (thanks to your donations). At the end, it is his presence that will help us to end that race.
Lenny, this little boy, and his mother that are daily fighting with heart against that dystrophy, will be my each instant motivation to reach the back of beyong.
All your donation will be fully use by Lenny to improve his daily life with that illness. All United for Lenny.
The "UNIS POUR LENNY" Association was created in 2014, by Lenny’s mother; he was 4, following the discovery of the disease. Lenny is a cheerful 6-year-old boy with Duchenne myopathy (muscular dystrophy). It is a disease causing progressive muscles degeneration.
This non-profit association aims to raise funds to offset the daily and medical expenses associated with this disease, as well as to realize Lenny's little dreams.
Lenny's daily life becomes more and more difficult; Simple tasks are binding on him. Its mobility is limited. His mother is fighting daily for her well-being and to make her life easier. Lenny is a combative child who has the joy of living.
You can make a donation on Keetchi. Being a declared association you can benefit from a tax abatement then leave us your coordinates to send you the certificate and do not hesitate.