Your participation is a must have as Siméon needs to get everyone onboard to fight against his sicness evolution. Please donate using the follwoing link on Leetchi (http://www.leetchi.com/c/simeon-mds2020). THANK YOU !
Lodier Serge , France
Votre âge : 47
Votre dernière participation : 03-04-2020
Our names are Serge and Guillaume. We are 47 and 41 years old respectively, we are friends, neighbors, fathers of two and four children.
We have decided to get involved in supporting a young kid called Siméon. Genetic research shows that Siméon has an anomaly in the ATL1 gene responsible for spastic paraplegia (SPG3), whose clinic is atypical. Siméon was born in 2013, he can't walk, he can't run, he can't talk, he's so wonderful, he inspires us, he needs help, we want to be there to help him and help him NOW !
Check out our post on LinkedIn : https://www.linkedin.com/pulse/i-can-talk-walk-even-run-he-cant-serge-lodier/
Thanks for any kind of things you can do to joining our journey in supporting Siméon's life. Best regards, Serge & Guillaume
37e édition ~ 21 avril au 1er mai 2023 ~ 250 km en 7 jours