The motivations to participate in the MARATHON DES SABLES are extremely diverse, and provide a force specific to each. The motivation of Delphine PEROTTEAU (FRA) is very particular and gives her an immeasurable strength which could allow her to move mountains… or failing to cross the desert for 250 km when she was a thousand miles from that there are a few years: “It was in 2010 that I discovered MDS, I found this race inhuman. Through programs on TV5 Monde I saw suffering, I was shocked: why hurt yourself so much? And then I went to the finish because my husband, Cyril, was participating. I then noticed the exchanges between Cyril and his teammates. It was inexplicable, I envied them a lot. I wanted to feel that, too, one day. "
Cyril, Delphine's husband, participated three times in the MARATHON DES SABLES, in 2010, 2013 and 2017; he was of course running for himself but also for the Thierry Latran Foundation which works to find a treatment against Charcot’s disease. “Cyril loved this race deeply, for his essential values of sharing and surpassing oneself. He had a deep respect and appreciated Patrick BAUER very much. Cyril left us on August 21, devastated by Charcot's disease. We had to run this legendary MDS together… So I decided to start in 2020. I will run with him in the desert, an extraordinary goal to stay up and run with Cyril in my heart. We made this promise to ourselves before he fell asleep forever. I will keep it… ”
At 45, executive assistant to the Ministry of the Armed Forces, Delphine defines herself as a "normal" sportswoman. Since 2010, she has taken a liking to trail running and more generally to sports in the great outdoors. So today she is impatiently awaiting the departure of MDS: "I only have one desire, it's to be on the line, to discover these landscapes of which Cyril spoke to me a lot, to live these exchanges with the other participants ... I'm not afraid at the moment, should I? I know it's going to be hard, especially over the long term. But I know why I’m doing it, it’s a way to close the loop, to say goodbye, to release him, to dismiss the disease. "
And then of course this participation is a way of continuing Cyril's fight against the disease: "I would like finally a doctor to be able to announce to his patient:‘ I CAN CARE FOR YOU! "This day must come! Dying in silence without treatment in inhuman conditions must stop as soon as possible. It has started to move in the last ten years or so, Charcot’s disease is better known now but before it was the desert, research was not progressing at all. The Ice Bucket Challenge was a driving force in the United States, and Canada and Belgium are also pioneers. Parkinson’s disease is a little like Charcot’s disease, there are bridges that are starting to happen, we have gone from nothing at all to first treatments. We know that if there is will there are means, then results; that I am still dying in silence in 2020 revolts me! "